SarcoidosisUK know that sarcoidosis patients often feel very isolated with their rare condition. Cardiac sarcoidosis (CS) is even rarer and can leave patients feeling completely lost and confused.
The new SarcoidosisUK Cardiac Sarcoidosis Facebook Group aims is to connect CS patients (and those with suspected CS) from across the UK to help support and educate each other. In addition, the group will host a discussion about other ways of meeting, particularly to include those who do not use the internet and / or Facebook.
If you have diagnosed or suspected CS, or you help to support someone who does, join the group by clicking the button below.