To ensure people have accurate information we have teamed up with specialists to bring the information below. This is a rapidly evolving situation – please check our social media channels or this page for updates. We will also be sending out updates in our newsletter
This is a financially very challenging time for the charity. It is normally the time when the majority of funds come in. However, the vast majority of events that fundraisers and their generous supporters would participate in have been cancelled. Please consider setting up a monthly donation to help us through this difficult time.
We have created a set of Frequently Asked Questions including information on social distancing and medication. You can find the FAQs here.
Sarcoidosis and Coronavirus Survey
The SarcoidosisUK Sarcoidosis and Coronavirus Survey is an online survey collecting information on the experiences of sarcoidosis patients during the coronavirus pandemic. It covers coronavirus symptoms and impact for those who have contracted, or think they have contracted, the virus, as well as questions on the impact of shielding and lockdown. The data will be used to help advocate for sarcoidosis patients. For more information haga clic aquí. To take the survey haga clic aquí.
Sarcoidosis and Covid-19 Patient Letter
SarcoidosisUK have created a letter for patients to carry on them to pass to clinicians should they be hospitalised with cornanvirus. This includes pertinent information about sarcoidosis for clinicians. rescription(s). This letter is in draft form and will be updated as soon as possible. Click here to download the letter.
Sarcoidosis and Covid-19 Shielding Letter
SarcoidosisUK have made available a letter explaining our position, based on Government guidance, on shielding for use with employers and medical professionals. Click here to download the letter.
Underlying Conditions and Coronavirus Treatment Portal Press Release
We urgently need an “Underlying Conditions and Coronavirus Treatment Portal” to increase survival rates for vulnerable groups and to preserve NHS resources from being spent treating easily avoided complications. Click aquí for Underlying Conditions and Coronavirus Treatment Portal Press Release.
Lung Conditions and Coronavirus Badges Press Release
We’re raising awareness of the challenges for people with coughs caused by underlying conditions. Click aquí for our Lung Conditions and Coronavirus Badges Press Release. Order one of our helpful badges in our shop.
Coronavirus – Video 4
Hacer clic aquí to view our video with Dr Lisa Spencer, Consultant Respiratory Physician and Chair of the British Thoracic Society Interstitial Lung Disease registry programme. Recorded on 11th April 2020.
We have released new badges for patients with sarcoidosis and other non-contagious lung diseases to explain coughs and protect them in public. Click aquí to view our new badges section in the store.
We have created new posters for patients with sarcoidosis and other non-contagious lung diseases to use during the coronavirus pandemic.
Hacer clic aquí to download the “My cough is not contagious. I have a lung condition” poster.
Hacer clic aquí to download the “My cough is not contagious. It’s sarcoidosis not coronavirus” poster.
Hacer clic aquí to download the “I have an underlying condition. Please be extra careful around me” poster.