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VOLUNTEER FOR SARCOIDOSISUK

SarcoidosisUK run a network of Support Groups across the UK. Our groups are all run by volunteers who are personally affected by sarcoidosis. You can learn more about volunteering to set up a support group or joining our Patient Advisory Panel on this page.

Talking to other people affected by sarcoidosis can feel very liberating. Unlike anyone else, they understand what you are going through. SarcoidosisUK’s Support Group network brings together people affected by sarcoidosis.

Our groups are really friendly. They usually meet every 4 or 6 weeks in hospitals, community centres, pubs and other public spaces. The groups are all run by volunteers who are personally affected by sarcoidosis.

You can learn more about our existing support groups here.

Can You Help to Run a SarcoidosisUK Support Group

Are you affected by sarcoidosis and would like a support group in your area? Do you have the skills required to run a support group? Can you give a few hours a month to help local people with sarcoidosis?

SarcoidosisUK are working to establish a national network of support groups. Our goal is that everyone in the UK with sarcoidosis should be able to meet others living with the condition. If you want a group in your area and you have the skills to help lead a group, please get in touch or fill in the form below. We have lots of experience and resources to help make it happen.

SarcoidosisUK are a tiny charity – we rely on people like you to get these groups off the ground!

 

Would You Like a SarcoidosisUK Support Group Near You?

SarcoidosisUK are working to establish a national network of support groups. Our goal is that everyone in the UK with sarcoidosis should be able to meet others living with the condition.

New support groups only start if there is demand in that area. Sorry if there is no support group meeting near you – they are reliant on enough interest in that area and a willing organiser. If you would like a group near you, please fill the form below to register your interest in a future group.

SarcoidosisUK will then use this information to contact you if and when a group starts. For longer comments and any problems please contact us. Please note that details you provide may be used to contact you by SarcoidosisUK but will never be shared with third parties.

Register Your Interest

Patient Advisory Panel

Are you a patient diagnosed with sarcoidosis? Does someone close to you have sarcoidosis? The supporters of SarcoidosisUK, patients, and their family and friends’ network play a vital role in the charity. We continue to listen to those affected by sarcoidosis to ensure that our activities are always driven by patient need, and that the patient voice is heard.

Click below to find out more about our panel and how you could get involved.