This is a financially very challenging time for the charity. It is normally the time when the majority of funds come in. However, the vast majority of events that fundraisers and their generous supporters would participate in have been cancelled. Please consider setting up a monthly donation to help us through this difficult time.
SarcoidosisUK Vaccine Statement
SarcoidosisUK strongly supports sarcoidosis patients receiving the Pfizer/BioNTech, Oxford/AstraZeneca or Moderna coronavirus vaccines. The vaccines have met strict standards of safety, quality and efficacy.
The COVID-19 vaccines are not live vaccines and there is no risk of infection from the vaccine. We have no reason to believe that they are unsuitable for sarcoidosis patients. The approved COVID-19 vaccines are also suitable for immunosuppressed patients.
All patients that receive the vaccination should continue to follow the government advice regarding social distancing, hand hygiene and mask wearing. Patients on the shielding list should continue to shield after being vaccinated until told otherwise.
We always consult with experts but we are not your doctor and this statement should not be regarded as a replacement for personal medical advice.
We have created a set of Frequently Asked Questions including information on social distancing and medication. You can find the FAQs here.
Coronavirus Vaccines FAQ
We have also created a set of Frequently Asked Questions about the COVID-19 vaccines, from a sarcoidosis patient perspective. You can find the Vaccines FAQ here.
Sarcoidosis and Coronavirus Survey Part 2
This survey is a follow up to the original SarcoidosisUK Sarcoidosis and Coronavirus Survey. The aim of this new survey is to understand how the current situation is affecting sarcoidosis patients one year on from the start of the pandemic. This includes their experience of lockdown, shielding and vaccines. The data will be used to help advocate for sarcoidosis patients. For more information click here. To take the survey click here.
Sarcoidosis and Coronavirus Survey
The SarcoidosisUK Sarcoidosis and Coronavirus Survey is an online survey collecting information on the experiences of sarcoidosis patients during the coronavirus pandemic. It covers coronavirus symptoms and impact for those who have contracted, or think they have contracted, the virus, as well as questions on the impact of shielding and lockdown. The data will be used to help advocate for sarcoidosis patients. For more information click here. To take the survey click here.
Sarcoidosis and Covid-19 Patient Letter
SarcoidosisUK have created a letter for patients to carry on them to pass to clinicians should they be hospitalised with coronavirus. This includes pertinent information about sarcoidosis for clinicians re prescription(s). This letter is in draft form and will be updated as soon as possible. Click here to download the letter.
Sarcoidosis Covid-19 Letter for Employers
Along with 20 other health charities, SarcoidosisUK have signed a Letter for Employers to help ensure a safe return to the workspace. Click here to read more and download the letter.
Sarcoidosis and Covid-19 Shielding Letter
SarcoidosisUK have made available a letter explaining our position, based on Government guidance, on shielding for use with employers and medical professionals. Click here to download the letter.
Underlying Conditions and Coronavirus Treatment Portal Press Release
We urgently need an “Underlying Conditions and Coronavirus Treatment Portal” to increase survival rates for vulnerable groups and to preserve NHS resources from being spent treating easily avoided complications. Click here for Underlying Conditions and Coronavirus Treatment Portal Press Release.
Lung Conditions and Coronavirus Badges Press Release
We’re raising awareness of the challenges for people with coughs caused by underlying conditions. Click here for our Lung Conditions and Coronavirus Badges Press Release. Order one of our helpful badges in our shop.
Coronavirus – Video 4
Click here to view our video with Dr Lisa Spencer, Consultant Respiratory Physician and Chair of the British Thoracic Society Interstitial Lung Disease registry programme. Recorded on 11th April 2020.
Coronavirus – Video 12
Click here to view Dr Lisa Spencer’s talk from the Sarcoidosis Patient Day in which she speaks about The British Thoracic Society’s Response to the Pandemic. Recorded on the 1st April 2021.
Coronavirus – Video 13
Click here to view Dr Robina Coker’s talk from the Sarcoidosis Patient Day in which she speaks about COVID-19 and Sarcoidosis – Risk and Change in Management/Monitoring. Recorded on the 1st April 2021.
We have released new badges for patients with sarcoidosis and other non-contagious lung diseases to explain coughs and protect them in public. Click here to view our new badges section in the store.
We have created new posters for patients with sarcoidosis and other non-contagious lung diseases to use during the coronavirus pandemic.
Click here to download the “My cough is not contagious. I have a lung condition” poster.
Click here to download the “My cough is not contagious. It’s sarcoidosis not coronavirus” poster.
Click here to download the “I have an underlying condition. Please be extra careful around me” poster.