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Coronavirus (Covid-19)

To ensure people have accurate information we have teamed up with specialists to bring the information below. This is a rapidly evolving situation – please check our social media channels or this page for updates. We will also be sending out updates in our newsletter

This is a financially very challenging time for the charity. It is normally the time when the majority of funds come in. However, the vast majority of events that fundraisers and their generous supporters would participate in have been cancelled. Please consider setting up a monthly donation to help us through this difficult time.

SarcoidosisUK Vaccine Statement

SarcoidosisUK strongly supports sarcoidosis patients receiving the Pfizer/BioNTech, Oxford/AstraZeneca or Moderna coronavirus vaccines. The vaccines have met strict standards of safety, quality and efficacy.

The COVID-19 vaccines are not live vaccines and there is no risk of infection from the vaccine. We have no reason to believe that they are unsuitable for sarcoidosis patients. The approved COVID-19 vaccines are also suitable for immunosuppressed patients.

All patients that receive the vaccination should continue to follow the government advice regarding social distancing, hand hygiene and mask wearing. Patients on the shielding list should continue to shield after being vaccinated until told otherwise.

We always consult with experts but we are not your doctor and this statement should not be regarded as a replacement for personal medical advice.

Coronavirus FAQ

We have created a set of Frequently Asked Questions including information on social distancing and medication. You can find the FAQs here.

Coronavirus Vaccines FAQ

We have also created a set of Frequently Asked Questions about the COVID-19 vaccines, from a sarcoidosis patient perspective. You can find the Vaccines FAQ here.

Sarcoidosis and Coronavirus Survey Part 2

This survey is a follow up to the original SarcoidosisUK Sarcoidosis and Coronavirus Survey. The aim of this new survey is to understand how the current situation is affecting sarcoidosis patients one year on from the start of the pandemic. This includes their experience of lockdown, shielding and vaccines. The data will be used to help advocate for sarcoidosis patients. For more information click here. To take the survey click here.

Sarcoidosis and Coronavirus Survey

The SarcoidosisUK Sarcoidosis and Coronavirus Survey is an online survey collecting information on the experiences of sarcoidosis patients during the coronavirus pandemic. It covers coronavirus symptoms and impact for those who have contracted, or think they have contracted, the virus, as well as questions on the impact of shielding and lockdown. The data will be used to help advocate for sarcoidosis patients. For more information click here. To take the survey click here.

Sarcoidosis and Covid-19 Patient Letter

SarcoidosisUK have created a letter for patients to carry on them to pass to clinicians should they be hospitalised with coronavirus. This includes pertinent information about sarcoidosis for clinicians. rescription(s). This letter is in draft form and will be updated as soon as possible. Click here to download the letter.

Sarcoidosis and Covid-19 Shielding Letter

SarcoidosisUK have made available a letter explaining our position, based on Government guidance, on shielding for use with employers and medical professionals. Click here to download the letter.

Press Releases

Underlying Conditions and Coronavirus Treatment Portal Press Release

We urgently need an “Underlying Conditions and Coronavirus Treatment Portal” to increase survival rates for vulnerable groups and to preserve NHS resources from being spent treating easily avoided complications. Click here for Underlying Conditions and Coronavirus Treatment Portal Press Release.

 

Lung Conditions and Coronavirus Badges Press Release

We’re raising awareness of the challenges for people with coughs caused by underlying conditions. Click here for our Lung Conditions and Coronavirus Badges Press Release. Order one of our helpful badges in our shop.

Coronavirus – Video 1

Click here to view our first Q&A with our Clinical Board Member Dr Robina Coker, consultant in respiratory medicine at Hammersmith Hospital, London.  Recorded on 14th February 2020.

Coronavirus – Video 2

Click here to view our second Q&A Dr Robina Coker which builds upon the information provided in the first video as the situation developed. Recorded on 6th March 2020.

Coronavirus – Video 3

Click here to view our third Q&A Dr Robina Coker which provides information on, amongst other things, shielding. Recorded on 4th April 2020.

Coronavirus – Video 4

Click here to view our video with Dr Lisa Spencer, Consultant Respiratory Physician and Chair of the British Thoracic Society Interstitial Lung Disease registry programme. Recorded on 11th April 2020.

Coronavirus – Video 5

Click here to view our Q&A video with Dr Robina Coker which provides updated advice and information on the coronavirus outbreak for people with sarcoidosis. Recorded on 23rd April 2020.

Coronavirus – Video 6

Click here to view our Q&A video with Dr Robina Coker which provides information about returning to work after shielding for people with sarcoidosis. Recorded on 28th July 2020.

Coronavirus – Video 7

Click here to watch the coronavirus section of our latest Q&A video with Dr Simon Hart. Recorded on 29th September 2020.

Coronavirus – Video 8

Click here to view our Q&A video with Dr Robina Coker in which she answers questions about lockdown, shielding and vaccines. Recorded on the 10th November 2020.

Coronavirus – Video 9

Click here to view our ninth COVID-19 Q&A video in which Dr Robina Coker and Dr Anna Blakney answer questions about the coronavirus vaccines. Recorded on the 22nd December 2020.

Coronavirus – Video 10

Click here to view our tenth Q&A video in which Dr Anna Blakney talks about the technology of the coronavirus vaccines. Recorded on the 3rd February 2021.

Coronavirus – Video 11

Click here to view our latest Q&A video with Dr Robina Coker in which she answers questions about COVID-19 vaccines. Recorded on the 9th March 2021.

Awareness Badges

We have released new badges for patients with sarcoidosis and other non-contagious lung diseases to explain coughs and protect them in public. Click here to view our new badges section in the store.

Awareness Posters

We have created new posters for patients with sarcoidosis and other non-contagious lung diseases to use during the coronavirus pandemic.

Click here to download the “My cough is not contagious. I have a lung condition” poster.

Click here to download the “My cough is not contagious. It’s sarcoidosis not coronavirus” poster.

Click here to download the “I have an underlying condition. Please be extra careful around me” poster.

Government Advice

You can find the most recent government information on Coronavirus (Covid-19) here.

For government guidance for employers see here.

Related content from SarcoidosisUK:

Contact

We would love to hear from you. Please get in touch with any questions, comments or suggestions.

Awareness

Everything SarcoidosisUK does improves awareness of sarcoidosis. See how you can get involved.

SarcoidosisUK Support

How can we support you? Find more information on our Nurse Helpline, Support Groups and Online Support.

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