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SarcoidosisUK Neurosarcoidosis Patient Day 2021

26th June 2021 (14:00 – 18:00 BST)

Our free neurosarcoidosis virtual patient day!

On the 26th June 2021, we hosted our annual Neurosarcoidosis Patient Day. This was a free virtual event, created specifically for sarcoidosis patients. The event provided patients with quality information about neurosarcoidosis, and included engaging talks from Professor John Brewer and neurosarcoidosis expert Dr Desmond Kidd.

If you missed any of the talks, or would like to watch them again, click the links below to see the recordings and transcripts for each session.

Introduction to Neurosarcoidosis Patient Day 2021

Neurosarcoidosis Treatment and Management

The Role of Exercise and Nutrition in the Management and Control of Sarcoidosis

Roundtable Talk

Q&A Session

2021 SarcoidosisUK Neurosarcoidosis Patient Day Speakers

Dr Desmond Kidd

Dr Kidd is the top neurosarcoidosis specialist in the UK and a world-expert on the condition. He established the Centre for Neurosarcoidosis at the Royal Free, North London and receives referrals from all over the country for diagnosis, treatment and research. Dr Kidd contributed to the SarcoidosisUK Patient Information Leaflet – Sarcoidosis and the Nervous System and spoke at the SarcoidosisUK Neurosarcoidosis Specialist Patient Days in 2019 and 2020. At the 2021 SarcoidosisUK Neurosarcoidosis Patient Day, Dr Kidd will be talking about neurosarcoidosis treatment and management, as well as answering your questions about the condition.

Professor John Brewer

John Brewer is a Professor of Sport and Exercise Science, and began his career as Head of Human Performance for the Football Association, a role that included being part of Sir Bobby Robson’s support team at the Italia 90 soccer World Cup. John has worked at the highest level with many top athletes and teams, and has also published a number of papers relating to sport and exercise. He has also authored six books, including “Running Science” and “Run Smart”, and was Chair of the British Handball Association at the London 2012 Olympic Games. John owned and managed the Lilleshall Sports Injury and Human Performance Centre in Shropshire for 15 years, before leaving to become Director of Sports Science at GlaxoSmithKline. After leaving GSK John worked at three UK universities, including five years as Pro-Vice Chancellor at St Mary’s University in London. John was diagnosed with sarcoidosis in 2011, and is a Trustee of SarcoidosisUK. He plans to run the “virtual” London Marathon in October 2021 to raise funds for SarcoidosisUK. At the 2021 SarcoidosisUK Neurosarcoidosis Patient Day, John will be talking about the role of exercise and nutrition in the management and control of sarcoidosis as well as answering your questions.

Jacqui Newton

Jacqui Newton has been the SarcoidosisUK Patient Ambassador for 7 years and she also moderates most of the charity’s Facebook support groups, providing information and support to thousands of sarcoidosis patients. Jacqui was diagnosed with sarcoidosis in 1974 and neurosarcoidosis in 1990. Sarcoidosis has affected her eyes, skin, lungs, joints, glands, bones, nervous system and spinal chord. Jacqui has been a patient of Dr Kidd’s for 8 years and is very grateful to have found him. Jacqui will be hosting the 2021 SarcoidosisUK Neurosarcoidosis Patient Day, as well as talking about her experience working with the charity.

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