020 3389 7221 info@sarcoidosisuk.org
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We want to make sure that anyone affected by sarcoidosis can find support whenever they need it and wherever they are. We have developed some amazing online support to help people affected by sarcoidosis communicate with each other.  

Facebook Group

SarcoidosisUK’s Facebook group is always a great place to go for support. There are thousands of members who understand what you are going through and offer amazing information, experiences and compassion.

Online Forum

You can use the SarcoidosisUK Online Forum to connect deeper with other sarkies. You can start, or contribute to, public or confidential discussions with other members.

Neurosarcoidosis Facebook Group

SarcoidosisUK’s Neurosarcoidosis Facebook group is a place for anyone affected by neurosarcoidosis to meet, share information and support each other. 

Cardiac Sarcoidosis Facebook Group

SarcoidosisUK’s Cardaic Sarcoidosis Facebook group is a place for anyone affected by cardiac sarcoidosis to meet, share information and support each other. 

SarcoidosisUK Online Support Feedback:

“You provide a great go-to service on Facebook where sufferers and their carers can ‘meet’ for information and support.”

SarcoidosisUK Facebook Group Member, February 2017

“Without the SarcoidosisUK site and forum I would have buckled and been in a very desperate state so I wish to say a very big THANK YOU TO YOU ALL…keep up the good work.”

SarcoidosisUK Facebook and Forum Member, 2017

“With the use of the SarcoidosisUK Facebook page we feel like we are now not alone.”

SarcoidosisUK Facebook Group Member, 2017

“I have lung Sarcoidosis for almost 5 years and have joined lots of support groups. The SarcoidosisUK Facebook Group by far is the most real, the most understanding, the most supportive, the most helpful and informative. Thank you to everyone involved at every level.”

SarcoidosisUK Facebook Group Member, 2017

Related content from SarcoidosisUK:

Sarcoidosis and Fatigue

Do you experience fatigue? Find symptoms, treatment and more information about sarcoidosis and fatigue.

Consultant Directory

Do you want to find a consultant? Use our directory to find a sarcoidosis specialist or clinic near you.

SarcoidosisUK Support

How can we support you? Find more information on our Nurse Helpline, Support Groups and Online Support.

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