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Welcome to SarcoidosisUK!
I am the Chairperson of SarcoidosisUK and was diagnosed with sarcoidosis in 2004. I know first hand how challenging it can be to have sarcoidosis. That challenge is the reason why we all work so hard at SarcoidosisUK.
SarcoidosisUK have four main goals – to provide quality information, to provide meaningful support, to increase awareness, and to fund research towards a cure. We work with top sarcoidosis specialists to write detailed information pages and leaflets. We have different support options so you can choose what works best for you; you can speak to a specialist nurse, you can meet others affected by sarcoidosis at one of our support groups or chat virtually in our online forums. We know it can be hard to find a doctor who understands sarcoidosis so we’ve created a recommended consultant list.
However SarcoidosisUK’s main goal is find a cure. We have funded a significant piece of research into understanding more about sarcoidosis each year for the past 3 years. We are going to fund more research this year, next year, and every year until we have found a cure for sarcoidosis.
None of our work is possible without donations. We receive no government money and are 100% reliant on your generosity. Any donation, big or small, makes a huge difference to our ability to help others and fund a cure. Please consider donating today!
Wishing you the very best,
Research Spending to Date
SarcoidosisUK Consultant Directory Entries
SarcoidosisUK Support Group Attendees in 2018
SarcoidosisUK Nurse Helpline Calls
SarcoidosisUK talked to Dr Muhuthan Thillai at Papworth Hospital in Cambridge. Dr Thillai is the Lead Clinician for the Cambridge Interstitial Lung Disease Unit. He is a Respiratory Consultant who has worked with sarcoidosis patients at many expert centres across the...
UK Neurosarcoidosis expert Dr. Kidd talks about his work and answers questions and Fionnuala Potts shares her neurosarcoidosis experience. Watch the video here.
Did you know you can add your medical information to your phone so emergency responders can access it without needing your password? This can include medication, emergency contacts and notes on your sarcoidosis consultant. You can also input emergency contacts to be...
We urgently need an “Underlying Conditions and Coronavirus Treatment Portal” to increase survival rates for vulnerable groups and to preserve NHS resources from being spent treating easily avoided complications. Many people with rare diseases have specific risks that...
Charity creates “My cough is not coronavirus” badges. SarcoidosisUK releases badges for patients with non-contagious lung diseases to explain coughs and protect them in public. One badge reads “My cough is not contagious. It’s sarcoidosis not coronavirus”. Originally...