SARCOIDOSISUK RESEARCH HUB

Sarcoidosis is a rare disease affecting 15 in 10,000 people in the UK. Despite progress over the past decades, sarcoidosis remains a poorly understood disease, is challenging to diagnose and treatment options are limited. SarcoidosisUK believes that research holds the key to a better future for all those suffering from sarcoidosis.

Research is an incredibly powerful tool and, by supporting research initiatives, we are providing the potential to bring about transformative changes to the way that sarcoidosis is diagnosed and treated.

SarcoidosisUK is dedicated to improving the lives and outcomes of everyone with sarcoidosis through high quality research. We understand the importance of patient and public involvement to ensure patient need drives all our charitable activities, including research. We endorse the AMRC’s position statement on the importance of patient and public involvement in medical research.

We are committed to supporting sarcoidosis related research and the communities who undertake potentially ground-breaking studies.  We will:

• Find and fund novel research ideas in the UK, nurture those ideas to help develop the future life-changing treatments and care for all patients with sarcoidosis.
• Invest in sarcoidosis research in the UK to expand the research capacity and increase awareness of the disease.
• Encourage patients to consider taking part in research studies.
• Support pharmaceutical companies and other research initiatives by signposting sarcoidosis patients to active research studies.

Find out more:

If you’d like more information about our membership of the Patient Advisory Panel, please contact us on info@sarcoidosisuk.org or click here for more information.