DISABILITY BENEFITS AND FINANCIAL SUPPORT
Introduction
There are four key benefits to consider, outlined briefly below and then in more detail further down the page. It is important that you use the relevant websites and/or contact details at the end of each section for more detailed information and to find out how to apply. There are many useful resources to help people claiming benefits, you can find links to some of the best resources in the box to the right and at the bottom of this page.
Main Benefits Overviews
Personal Independence Payment (PIP) Overview
-
For people aged 16 – below State Pension age to help them meet the extra costs of having a long-term health condition or disability (excluding Scotland). If you have been awarded PIP you can stay on it past retirement age.
-
Points system assesses how your condition affects your ability to cope with daily life and mobility.
-
If awarded, there is a daily living component and a mobility component. Each has two rates; standard and enhanced.
-
Not affected by income or savings, not taxable and you can get it whether in work or not.
- If your doctor has said you are terminally ill, and thinks it is reasonably likely that you will not live longer than six months, there is a different application process. This does not mean that if you live longer than six months you will lose the benefit.
-
The Citizens Advice page can guide you through the process of applying for PIP and can also help you fill in the form.
Adult Disability Payment
- In Scotland, PIP has been replaced by Adult Disability Payment (ADP).
- This has the same eligibility criteria and payment rates as PIP, but it is run by Social Security Scotland and the application process is different- you can apply online with a mygovscot account.
- For more information, including a link to start an application, visit the Scottish Government website.
- ADP has a different application process if your doctor considers that you are terminally ill. The six month rule does not apply in Scotland.
- People who live in Scotland and are currently receiving either DLA or PIP will be moved over to ADP. You won’t need to fill in a form or have an assessment. People who have a review coming up will be moved first. If your condition changes and you report a change in circumstances to the DWP this should also trigger a move to ADP.
- The Citizens Advice Scotland info page on ADP can provide you with more information.
Employment and Support Allowance (ESA) Overview
-
Payable to people unable to work because of ill health or disability.
-
Requires a medical certificate (‘fit note’) from your GP to make a claim.
-
You will be required to fill out a medical questionnaire, attend a medical assessment and a work-focused interview
-
This is intended to determine your capability to work. It is possible to challenge the decision.
Attendance Allowance (AA) Overview
-
For people over State Pension age across the UK.
- You can’t claim both PIP/ADP and AA.
-
You don’t have to be receiving any care in order to claim, and you don’t have to spend the money on carers or getting care.
-
AgeUK can provide you with more information on AA.
Disability Living Allowance for Children Overview
-
A benefit which you may be able to claim if your child has additional needs as a result of sarcoidosis or another condition (excluding Scotland).
-
Citizens Advice can provide you with more information and support with completing the form.
-
Some adults may also still be getting DLA if they claimed before 10 June 2013 but will be invited to claim Personal Independence Payment (PIP). To find out when this will affect you, use the PIP checker: www.gov.uk/pip-checker
Child Disability Payment
- For children under 16 who reside in Scotland.
- Scottish children who are receiving DLA will be moved over to CDP. You will not need to complete a new application.
- For more information about applying for CDP, and a link to start an application, click here: https://www.mygov.scot/child-disability-payment
PIP Q&A Video with SarcoidosisUK Nurse Jenny
Trusted Sources of Further Support and Information on Benefits.
- The benefits system is complex and changes often. The government’s Gov.uk website has up-to-date information: www.gov.uk/browse/benefits
- To find out what benefits you (and your family) may be entitled to, you can complete an anonymous assessment: www.gov.uk/benefits-adviser
- Get help at work if you’re disabled or have a health condition (Access to Work): https://www.gov.uk/access-to-work
- Benefits and Support Facebook Group: ESA DLA/PIP Info/Support (OFFICIAL Group).
- Benefits and General Support Facebook Group: 4UP.
- UK Government Benefits Calculator.
- Benefits and Work Information and Publications (Paid Subscription).
- Citizens Advice Bureau: How to Claim Benefits.
- Citizens Advice Bureau: Appealing DWP Benefits Decisions.
Navigating the Benefits System – 8 Top Tips
These 8 top tips should make the process of navigating the UK benefits system more manageable:
-
The benefits system is complex and changes often. Check for up-to-date information: www.gov.uk/browse/benefits.
-
Please remember that the people you will be dealing with are unlikely to know anything about sarcoidosis. You will need to educate them on your condition and provide evidence. Read the official information on sarcoidosis (e.g. the Department for Work and Pensions (DWP) document below) to the people you will be meeting.
-
You may find useful the medical guidance for DWP staff who make decisions on adult cases for Disability Living Allowance (DLA) and for Attendance Allowance (AA): A-Z Adult Medical Conditions
-
Be prepared – have details of your condition, including diagnoses, in writing. You will need to be organised and make sure everything is evidenced. For example, if your case is severe, ask your consultant or GP to use the word ‘severe’ in a letter.
-
Confirm all correspondence in writing or by email (and keep copies). If something has been said or agreed and it is not in writing it might as well not exist! If you are told something helpful on the phone or at a meeting/interview, then write to them to confirm it. It can be helpful to use bullet points. Be aware that anything you write may later be used to judge the validity of your claim.
-
Especially if you feel too unwell or overwhelmed, ensure you seek support in while applying for benefits. This might be from a relative or friend, Social Services, your GP’s surgery or your local Citizens Advice Bureau: www.citizensadvice.org.uk/
-
Remember you are a citizen who has statutory rights. You did not want sarcoidosis, and are dealing with the consequences. Do not allow yourself to be intimidated or mismanaged by the system. Be polite with everyone, but know your rights.
-
Some of the benefits included in this guide are means-tested, some are contributions-based. Means-tested benefits are based on your income or household income, including some selected benefits you may already claim. Your payment will reduce gradually as you earn more. Contribution-based benefits require a minimum amount of National Insurance contributions for you to qualify.
Main Benefits: Health, Disability and Mobility Related Support
Personal Independence Payment (PIP)
-
For people aged 16 – below State Pension age to help them meet the extra costs of having a long-term health condition or disability (excluding Scotland). If you have been awarded PIP you can stay on it past retirement age.
-
Points system assesses how your condition affects your ability to cope with daily life and mobility.
-
If awarded, there is a daily living component and a mobility component. Each has two rates; standard and enhanced.
-
Not affected by income or savings, not taxable and you can get it whether in work or not.
- If your doctor has said you are terminally ill, and thinks it is reasonably likely that you will not live longer than six months, there is a different application process. This does not mean that if you live longer than six months you will lose the benefit.
-
The Citizens Advice page can guide you through the process of applying for PIP and can also help you fill in the form.
PIP has two components – Daily Living Activities and Mobility Activities. You can be paid for one or both components depending on your eligibility.
For each component, there are two rates, standard and enhanced. You will be assessed on a points system to decide which rate you qualify for. To qualify for the standard rate you need eight points, and for the enhanced rate you need 12 points.
To assess your eligibility you will have to undergo an assessment by an independent healthcare professional. For this assessment, it may be helpful to think about how you feel on your worst days. This can help the healthcare assessor decide how much support may be require more accurately.
If you’re awarded the enhanced rate of the mobility activities component, you may also be eligible to access the Motability Scheme or the Blue Badge Scheme (see below). You may be subject to further assessment for access to these schemes.
Only around 45% of PIP claims are successful. They provide information to help you understand why a claim has been rejected. Many negative decisions are reversed on appeal. If appealing, be sure to have copies of everything in writing and remember to request copies of all documents used by the DWP in making their decision. Carefully read what they have said, look at the documents they use in making their decision, and ensure that your appeal clearly states why you meet their requirements
If your appeal is rejected and you believe the decision to be unfair, you can complain to the Parliamentary and Health Service Ombudsman.
More information and how to apply:
PIP Overview: www.gov.uk/pip/overview
Claiming PIP: www.gov.uk/pip/how-to-claim
PIP Guide to Claiming (Disability Rights UK): https://www.disabilityrightsuk.org/personal-independence-payment-pip
PIP phone numbers:
New claims: 0800 917 2222
Existing claims: 0800 121 4433
Existing claims text phone: 0800 121 4493
Adult Disability Payment (ADP)
- In Scotland, PIP has been replaced by Adult Disability Payment (ADP).
- This has the same eligibility criteria and payment rates as PIP, but it is run by Social Security Scotland and the application process is different- you can apply online with a mygovscot account.
- For more information, including a link to start an application, visit the Scottish Government website.
- ADP has a different application process if your doctor considers that you are terminally ill. The six month rule does not apply in Scotland.
- People who live in Scotland and are currently receiving either DLA or PIP will be moved over to ADP. You won’t need to fill in a form or have an assessment. People who have a review coming up will be moved first. If your condition changes and you report a change in circumstances to the DWP this should also trigger a move to ADP.
- The Citizens Advice Scotland info page on ADP can provide you with more information.
ADP phone number (for everything): 0800 182 2222
If you disagree with a benefit decision you can find out more information here: https://www.mygov.scot/disagree-decision
Disability Living Allowance (DLA)
You can no longer apply for DLA. If you’re on DLA you will eventually be asked to apply for PIP. In Scotland you’ll be moved to ADP and Social Security Scotland will review your award based on your current circumstances. This may change the amount you are awarded.
Disability Living Allowance (DLA) for children
Sarcoidosis is rarely diagnosed in children but if you are caring for a child under 16 who satisfies the care or mobility criteria as a result of an illness or disability, you may be eligible to claim DLA (excluding Scotland). You’ll need to show your child has significantly more care needs than a child of the same age without any health problems.
DLA has two components: a Care Element and a Mobility Element. To qualify for the mobility component your child must be three or older.
More information and how to apply:
DLA Overview: www.gov.uk/disability-living-allowance-children
DLA Factsheet: www.disabilityrightsuk.org/disability-living-allowance-dla
DLA for children helpline: 0800 121 4600
Child Disability Payment
For children under 16 who reside in Scotland. It replaces DLA in Scotland, and Scottish children who are receiving DLA will be moved over to CDP. You will not need to complete a new application. There’s more information about applying for CDP, and a link to start an application, here: https://www.mygov.scot/child-disability-payment
CDP helpline: 0800 182 2222
Employment and Support Allowance (ESA)
If you are 16 – State Pension age and unemployed or working under 16 hours a week, you may be eligible to claim Employment and Support Allowance (ESA). ESA is designed to provide financial support when you are looking for work or if you are unable to work as a result of your condition. ESA is means tested.
ESA’s financial support has two elements:
-
Contributory ESA which will depend on your National Insurance contributions.
-
Income-related ESA which is the means-tested element and depends on your income and savings.
When applying for ESA, you will have to attend a Work Capability Assessment to help determine you eligibility. During this assessment, you should think about how you can show the difficulties and limitations you would face if you had to work for an average week when your health condition is bad.
After this assessment, the Department for Work and Pensions will place you in either the:
Work-related activity group – you will be expected to try to find employment and have regular interviews with an adviser.
or the
Support group – you will not be expected to look for employment as your illness or disability has a severe effect on your ability to work.
If you are not eligible for ESA, you may be eligible to apply for Job-Seekers Allowance (JSA) or Universal Credit instead.
More information and how to apply:
ESA Overview: www.gov.uk/employment-support-allowance/overview
ESA Factsheet: www.disabilityrightsuk.org/employment-and-support-allowance-overview
New claims:
Telephone: 0800 055 6688
Textphone: 0800 023 4888
Welsh language: 0800 012 1888
Existing claims:
Telephone: 0345 608 8545
Textphone: 0800 608 8551
Welsh language : 0800 600 318
Attendance Allowance (AA)
Attendance Allowance is a non-means-tested and non-contributory benefit paid to people aged over the State Pension age who have personal care needs because of their health. You must have had care needs for at least six months to apply for Attendance Allowance.
It’s paid at two different rates and which rate you get depends on the level of care that you need because of your disability. The two rates are: lower rate for care needs either during the day or overnight; higher rate for care needs during both the day and night. You do not need to be receiving care and it doesn’t matter if you live alone.
Attendance Allowance (AA) is the equivalent of DLA/PIP for those over the State Pension age.
-
For people aged over the State Pension age who have a health condition which has lasted at least six months.
-
Entitlement is based on care needs resulting from how your health affects your everyday life.
-
Not affected by any income or savings you have; payable alongside any other benefits (except Disability Living Allowance or Personal Independence Payments). You do not have to have paid national insurance contributions.
More information and how to apply:
AA Overview: www.gov.uk/attendance-allowance
AA Factsheet: www.disabilityrightsuk.org/attendance-allowance-aa
AA helpline: 0800 731 0122
Textphone: 0345 604 5312
Transport
The Blue Badge Scheme enables you to park in disabled parking bays and/or apply for a parking space where you live.
The Motability Scheme provides affordable leases for adapted cars and scooters.
Transport for London have introduced a badge to be worn on public transport saying “Please offer me a seat”. This is designed for people who have less visible disabilities such as sarcoidosis.
Blue Badges are administered by local authorities, but applications are through a central Government portal: https://www.gov.uk/apply-blue-badge. Some local authorities will have a paper application form you can request or download from their website. You can find the Blue Badge information from your local authority by searching here: https://www.gov.uk/blue-badge-scheme-information-council. Local authorities may have different eligibility or assessment procedures.
More information and how to apply:
Blue Badge Overview: www.gov.uk/blue-badge-scheme-information-council
Blue Badge Apply: www.gov.uk/apply-blue-badge
Motability Scheme Overview: www.motability.co.uk
Motability Scheme Telephone: 0300 456 4566
Motability Scheme Factsheet: www.disabilityrightsuk.org/motability-scheme
People in Scotland can apply for a disabled person’s bus pass. Find out more information here: https://www.mygov.scot/disabled-bus-pass
Bus passes for disabled people in England are issued by local authorities- you can find out the arrangements in your area here: https://www.gov.uk/apply-for-disabled-bus-pass
Disabled person’s bus pass in Wales: https://www.gov.wales/apply-bus-pass
Northern Ireland bus travel and concessions: https://www.nidirect.gov.uk/information-and-services/bus-and-coach-travel/free-bus-travel-and-concessions
Work Related Financial Support and Benefits
Statutory Sick Pay
If you are employed, Statutory Sick Pay (SSP) will be paid to you by your employer for up to 28 weeks when you are too ill to work.
Eligibility Summary:
-
Working for your employer under a contract of service.
-
Earning above the stated earnings threshold before tax and national insurance.
-
Have been sick for at least four days in a row.
You will need to contact your employer to find out their application procedure. Some employers will pay SSP automatically but others may require a letter to request it.
Once SSP ends, if you’re still too sick to return to work, you may be eligible for Employment and Support Allowance.
More information and how to apply:
Overview: www.gov.uk/statutory-sick-pay/overview
Universal Credit
Universal Credit has now been introduced everywhere, and people on certain ‘legacy benefits’ will move to Universal Credit by 2029. There’s more information on these benefits, and when (or whether) you should move here: https://www.citizensadvice.org.uk/benefits/universal-credit/before-you-apply/moving-to-universal-credit-from-other-benefits/. The amount you’ll get depends on your circumstances and the areas of support that you are eligible for. It is paid monthly and you may be eligible whether you are working or not.
The areas of support within Universal Credit include housing, childcare, disabilities and caring for someone with a disability.
It’s important to take specialist advice before claiming. Visit Citizens Advice for more information and help with applying.
More information:
Overview: www.gov.uk/universal-credit/overview
Factsheet: https://www.disabilityrightsuk.org/resources/universal-credit-0
Carer and Health Related Financial Support and Benefits
Carer’s Allowance
You may be able to claim Carer’s Allowance if you spend at least 35 hours a week caring for someone age over 16 with substantial caring needs and. You do not have to live with or be related to the person you care for.
The person you care for must already receive one of these benefits:
-
Personal independence Payment (PIP) daily living component
-
Disability Living Allowance (DLA) at the middle or highest care rate
-
Attendance Allowance (AA)
-
Constant Attendance Allowance at or above the normal maximum rate with an Industrial Injuries Disablement Benefit
-
Constant Attendance Allowance at the basic (full day) rate with a War Disablement Pension
-
Armed Forces Independence Payment
If you receive the State Pension, get specialist advice before you apply for Carer’s Allowance, as the two benefits can’t be paid at the same time.
Carer’s Allowance is non-contributory and non-means-tested. But any other means-tested benefits you do get will be reduced by the same amount you get from Carer’s Allowance.
Applying for Carer’s Allowance can affect other benefits, including the benefits of the person you’re caring for. It’s important to get advice before applying: https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/carers-allowance/
More information and how to apply:
Overview: www.gov.uk/carers-allowance/overview
Carer’s Allowance Unit: 0800 731 0297
People in Scotland who receive Carer’s Allowance get additional payments- Carer’s Allowance Supplement- in June and December. There’s more information here: https://www.mygov.scot/carers-allowance-supplement
Carer’s Credit
If you don’t qualify for Carer’s Allowance, you may be eligible to get Carer’s Credit if you care for someone for at least 20 hours a week. You cannot claim if you’re already claiming Carer’s Allowance.
The person you’re looking after must get one of the following:
-
Disability Living Allowance (DLA) care component at the middle or highest rate
-
Attendance Allowance (AA)
-
Constant Attendance Allowance
-
Personal Independence Payment (PIP) daily living component, at the standard or enhanced rate
-
Armed Forces Independence Payment
Carer’s Credit is not means-tested so will not be affected by your income or savings. Carer’s Credit is a National Insurance credit so if you have to stop work due to your caring responsibilities, you National Insurance contributions will still be paid. This means you can take on caring responsibilities without affecting your ability to qualify for the state pension.
More information and how to apply:
Overview: www.gov.uk/carers-credit/overview
Telephone: 0800 731 0297
Textphone: 0345 604 5312
Help with Prescription Costs (England Only)
If you live in England you may be eligible to apply for help with prescription costs. NHS prescription charges have been abolished in Scotland, Wales and Northern Ireland. In England people who are under 16, or under 19 and in full time education, or over 60 are automatically entitled to free prescriptions.
In England, there are three main ways to get free or reduced prescription costs:
-
Medical Exemption Certificate
-
Low Income Scheme
-
Prescription Prepayment Certificate (PPC).
A Medical Exemption Certificate may enable you to get free prescriptions if you:
-
are pregnant or have had a baby in the last 12 months
-
are a war pensioner being treated for your accepted disability
-
are being treated for TB, cancer, the effects of cancer or the effects of cancer treatment
-
have a specified physical disability that prevents you leaving home without the help of another person
The Low Income Scheme enables you to get free or reduced prescription costs. You may qualify for the Low Income Scheme if you have a low income and your capital is £16,000 or less. Your capital allowance rises to £23,250 if you are in a care home.
If you are eligible for the Low Income Scheme, you may also be eligible for support with other medical costs including dental costs, eye care costs, healthcare travel costs and wigs and fabric supports cost.
The Prescription Prepayment Certificate enables you to save money on prescription costs if you are not eligible for the Low Income Scheme or Medical Exemption certificate. Buying a Prescription Prepayment Certificate will save you money on prescription costs if you need four or more items in a three month period or if you need 12 or more items in a year.
More information and how to apply:
Overview: https://www.nhs.uk/nhs-services/help-with-health-costs/
Prescription costs checker: https://www.gov.uk/help-nhs-costs
General Queries and Low Income Scheme Telephone: 0300 330 1343
Medical Exemption and Prepayment Certificate Telephone: 0300 330 1341
Income & Tax Related Financial Support and Benefits
Income Support
Income Support is now part of Universal Credit.
Tax Credits
Tax Credits have been replaced by Universal Credit for most people.
For more information visit the Citizens Advice website.
Pension Credit
Pension Credit is a means-tested benefit for people who have reached the qualifying age. The qualifying age is gradually increasing in line with the increase of state pension age.
It has two parts, and you may be entitled to one or both:
-
Guarantee Credit – this tops up your weekly income to reach minimum guaranteed level.
-
Savings Credit – eligible claimants will have saved some money towards their retirement.
You can claim Pension Credit whether or not you still work. It’s best to get specialist advice on whether you’re eligible to apply.
More information and how to apply:
Overview: www.gov.uk/pension-credit/overview
Telephone: 0800 99 1234
Textphone: 0800 169 0133
Pension Service Helpline: 0800 731 0469
State Pension
The State Pension is a regular payment you can claim if you reach state pension age on or after April 2016. This benefit is contributions-based and you’ll usually need to have paid or been credited at least 10 years’ national insurance contributions to qualify. If you are not eligible for the State Pension as you haven’t made enough contributions, you may qualify for a ‘top up’ state pension through your spouse’s or civil partner’s National Insurance contributions.
You won’t receive the State Pension automatically when you reach the qualifying age you must apply to claim it. You should get a letter four months before you reach state pension age telling you what to do.
You can check your State Pension eligibility and projected amount here: https://www.gov.uk/check-state-pension
You need to claim your State Pension either online or via the Pension Claim line: 0800 731 7898
Housing Related Financial Support and Benefits
Housing Benefit
Housing Benefit has been replaced by Universal Credit for most people.
For more information visit: www.gov.uk/housing-benefit/overview
Council Tax Reduction
Council Tax Reduction is a means-tested benefit which helps you to pay your Council Tax. If you are eligible, your Council Tax bill could be reduced by up to 100%.
You could be eligible if you’re on a low income or claim benefits. You can apply if you own your home, rent, are unemployed or working.
What you get depends on:
-
Where you live – each council runs its own scheme.
-
Your circumstances (eg income, number of children, benefits, residency status).
-
Your household income – this includes savings, pensions and your partner’s income.
-
If your children live with you.
-
If other adults live with you.
This is administered by local authorities, so get in touch with them.
- Find your local council in England: https://www.gov.uk/apply-council-tax-reduction
- Find your local authority in Scotland: https://www.mygov.scot/council-tax/discounts-exemptions-and-reductions
- Eligibility checker for Wales: https://www.gov.wales/council-tax-discounts-and-reduction
- Rates information for Northern Ireland: https://www.nidirect.gov.uk/rates-help
Winter Fuel Payments
A Winter Fuel payment is a tax-free payment of £250-£600 paid automatically every year between November and December to help you pay your heating costs. You must have been born on or before 5 May 1953 to be eligible for this payment.
If you have never received a Winter Fuel Payments, don’t receive any benefits or only receive Housing Benefit, Council Tax Reduction or Child Benefit, you will need to apply to receive the payment. If you have received a Winter Fuel Payment before or you receive any benefits or a State Pensions, you do not need to apply for Winter Fuel Payments as it will automatically be paid to you.
More information and how to apply:
Overview: www.gov.uk/winter-fuel-payment/overview
Telephone: 0800 731 0160
Textphone: 0345 606 0285
In Scotland, Winter Fuel Payment has been replaced with Winter Heating Payment. The eligibility requirements are the same. Find out more information here:
https://www.mygov.scot/winter-heating-payment. Most people who are eligible will get the benefit automatically, but you can find a checker here: https://www.mygov.scot/winter-heating-payment/check-eligibility-for-whp
Warm Home Discount Scheme
The Warm Home Discount Scheme is a one-off discount on your winter electricity bill paid directly to your provider. This scheme is run with electricity providers so you need to register your interest with your electricity provider. This discount will be taken off your winter electricity bill if you met the eligibility criteria on the qualifying date for that year’s discount.
To be eligible for this discount, on the qualifying date:
-
Your supplier must be part of the scheme.
-
Your name or your partner’s must be on the bill.
-
You must be receiving the guaranteed credit element of Pension Credit (even if you get Savings Credit as well).
If you don’t qualify for the Warm Home Discount, some electricity providers help to people on low incomes or means-tested benefits so check with your supplier to see if you’re eligible for any support and how to apply.
More information:
Overview: www.gov.uk/the-warm-home-discount-scheme/what-youll-get
Telephone: 0800 107 8002
Cold Weather Payments
Cold Weather Payments are automatically paid to eligible claimants when the average temperature in your area falls below a certain temperature for a period of seven days between 1 November and 31 March. This is no longer available in Scotland.
To be eligible for these payments you must be receiving one the following income-related benefits:
-
Income Support or Income-based Jobseeker’s Allowance because you are aged 60 or over.
-
Income Support or Income-based Employment and Support Allowance (ESA) and have a child under five or are responsible for a disabled child.
-
Income Support if you are long-term sick or disabled.
-
Pension Credit.
-
Universal Credit.
You don’t need to apply for a Cold Weather Payment as these will automatically be added to and paid with your normal benefits payments.
More information:
Overview: www.gov.uk/cold-weather-payment/overview
Additional Sources of Information
Your local Citizens Advice Bureau may be a good source of information and help. You can visit your local Citizens Advice Bureau (CAB) in person for advice. To find your local CAB please visit the website or call the Phone Service for your area.
Alternatively, social services or your GP can direct you to experts. Online, Disability Rights UK and the Benefits and Work websites have independent and high quality information on many aspects of benefits. You may also want to look at the Government’s Benefits calculator. Don’t forget to explore SarcoidosisUK’s support network where you can share your experiences with others.
Unfortunately, SarcoidosisUK is unable to provide financial support to individuals, nor can we offer personal advice on benefits. We are a small charity and unfortunately don’t have the resources at this time.
Citizens Advice Bureau
Website: www.citizensadvice.org.uk/benefits
National Phone Service (England): 03444 111 444
National Phone Service (Wales): 03444 77 20 20
National Phone Service (TextRelay): 03444 111 445
NHS Care and Support Guide
Website: www.nhs.uk/Conditions/social-care-and-support-guide
UK Government
Website: www.gov.uk/browse/benefits
Benefits calculator: www.gov.uk/benefits-calculators
Parliamentary and Health Service Ombudsman: www.ombudsman.org.uk/
Other Online resources
Disability Rights UK: www.disabilityrightsuk.org/how-we-can-help/benefits-information-disabled-people-and-advice-workers
Disability Rights UK Information Factsheets: www.disabilityrightsuk.org/how-we-can-help/benefits-information/factsheets/factsheets-alphabetical-order
Benefits and Work: www.benefitsandwork.co.uk/
ESA DLA/PIP Information and Support Facebook Page (unassociated with SarcoidosisUK)