“I felt as though I had nowhere to turn because there is very little awareness and support for those suffering with sarcoidosis – it was very useful to speak with someone who understands life with the condition as well as having the professional expertise. Thank you”

“The helpline was great. There is not much help or information except the internet, so speaking to someone who understands and can answer questions was brilliant, thanks.”

“With this condition you can feel alone as its such a rare condition. It was so lovely to talk to some one who experienced the same condition and fully understood how you felt. She answered all my questions! A huge thank you!!!”

“The nurse was amazing, she put me at ease and just listened and answered all my worries. We were on the call for a while, I was going back and forth, and she just let me talk. Just what i needed – thank you!”

“Can’t thank you enough for the work you provide. Whilst this condition is incurable, it makes the world of difference to know we’re not alone, it makes the days pass more bearably. That’s invaluable so many thanks!!!”

“I have only very recently been diagnosed and really appreciated being able to talk things through with the nurse. It has given me a better understanding of the condition, possible future treatment and some lifestyle measures which I can take.”