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SARCOIDOSIS OCH LUNGS

Sarcoidosis can occur in any organ of the body. In about 90% of patients, sarcoidosis affects the lungs and / or lymph glands. This is also known as ‘pulmonary sarcoidosis’. The information on this page is for anyone affected by pulmonary sarcoidosis.

Informationen på denna sida har sammanställts med hjälp av sarkoidos specialist Prof S. Birring, Consultant Respiratory Physician at Kings College Hospital, London and Prof L.P. Ho, Respiratory Physician at Oxford University NHS Foundation Trust.

Lungans och Sarcoidosens funktion

The lungs transfer oxygen from the air we breathe into the blood. At the same time, carbon dioxide leaves the blood through the lungs. This exchange happens in the lungs.

In pulmonary sarcoidosis, abnormal immune cells (known as ‘granuloma’) gather in the lungs and disrupt the uptake of oxygen.

These granuloma can also result in scarring. Scarring prevents the lungs stretching fully, and therefore limits their capacity. This in turn leads to loss of fully functional lung tissue and, eventually, shortness of breath.

In addition, these granuloma may develop around the lymphatic (or ‘lymph’) system of the lungs. The lymph system is an important part of the immune system that circulates the immune cells in the body.

 

Symptoms of Lung Sarcoidosis

Ibland börjar symtomen på lungsarcoidos plötsligt och håller inte länge. I andra patienter kan symtomen utvecklas gradvis och varar i många år.

Vissa människor har inga symptom alls och får veta att de har sarkoidos efter att ha haft rutinmässig bröströntgen eller andra undersökningar.

Vanliga symptom på lungsarcoidos inkluderar:

  • fatigue and feeling ‘washed out’
  • andnöd, särskilt med motion
  • dry and persistent cough
  • bröstsmärta

Du kan läsa att konsulter klassificerar sarkoidos i "Stages of Sarcoidosis". I verkligheten är detta en sällan använd teknik av kliniker i Storbritannien.

Bor med lungsarcoidos

Sarcoidos påverkar människor väldigt annorlunda - varje fall är unikt. Men det finns några delade erfarenheter för dem som lever med sarkoidos.

Det är vanligt att patienter med sarkoidos kan känna sig trötta och lustiga (trötta), gå ner i vikt eller lida med feber och nattsvett.

Sometimes symptoms may suddenly get worse – this is known as a ‘flare-up’. This may be triggered by stress, infections, a change in environment or, often, nothing recognisable.  

It is important to make sure you eat healthily, pace yourself and talk to friends and family about your sarcoidosis. You should discuss your condition early on with your employer – use the SarcoidosisUK Leaflet Information för arbetsgivare.

Sarcoidos kan låta patienter känna sig rädda och isolerade - erkänna psykiska problem tidigt och söka stöd. Snälla du kontakta SarcoidosisUK eller din läkare för professionellt stöd.

Tekniker för att förstå ditt tillstånd

Sarcoidosis can be difficult to diagnose, particularly if the symptoms aren’t obvious. Multiple tests or scans may be needed to make a diagnosis.

Röntgenstrålar can give a picture of lung abnormalities. Generally, if abnormalities are found, additional tests are performed to confirm any diagnosis.

Lung Function Tests. Spirometry tests how well you breathe in and out. Lung volume tests measure the total size of your lungs. Gas transfer tests measure the amount of oxygen that passes from your lungs into your blood.

datortomografi (also called CAT scan or computed tomography) combines X-rays and computer technology to create detailed images of the inside of your body.

MR-skanningar use magnetic fields and radio waves. They show some abnormal tissue clearer than CT scans. MRI is rarely used with the lungs but may be useful to check if other organs like the bones and heart are affected.

bronkoskopi. Your doctor may use a thin flexible camera inserted through your mouth to examine your lungs for signs of sarcoidosis. They may then remove tiny amounts of lung or lymph nodes to help make a diagnosis (a biopsy).

In rare cases, surgery is required to obtain a biopsy. This technique is often used when doctors want to be sure to confirm the disease as sarcoidosis. The most common technique for this is called VATS (video-assisted thoracoscopic surgery).

Outlook

Sarcoidosis affects people differently and often follows an unpredictable course. Most patients with pulmonary sarcoidosis recover within a few years; sometimes no treatment is needed.

Some patients are more severely affected with symptoms worsening over time – more prolonged treatment may be necessary. This is known as chronic sarcoidosis.  

Treating Pulmonary Sarcoidosis

There is no cure for sarcoidosis. When treatment is required, its purpose is to prevent lung inflammation and scarring, worsening of the disease and to improve quality of life. Treatment can help relieve the symptoms as the disease runs its course.

Many patients experience side-effects from medication. You will discuss with your doctor the best treatment regime for you; regular check-ups may be necessary.

kortikosteroider (commonly called prednisolon) may be used for a year or more. These drugs act to suppress the disease. A high dose is usually prescribed at the start of the treatment, before being reduced to a ‘maintenance dose’.

NSAIDS (Non-steroidal Anti-Inflammatory Drugs) are anti-inflammatory drugs similar to aspirin; they are also mild painkillers. They are often used to reduce pain (e.g. joint pain).

Methotrexate and Azathioprine can be given in combination with corticosteroids for those with more severe sarcoidosis.

Page last updated: August 2019. Next review: August 2021.

Relaterat innehåll från SarcoidosisUK:

Sarcoidos och trötthet

Upplever du trötthet? Hitta symtom, behandling och mer information om sarkoidos och trötthet.

Konsultkatalog

Vill du hitta en konsult? Använd vår katalog för att hitta en sarkoidos specialist eller klinik nära dig.

SarcoidosisUK Support

Hur kan vi stödja dig? Hitta mer information om vårhjälpen, supportgrupper och online support.

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