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SARCOIDOSIS和心理健康

結節病是約30%患者的慢性健康狀況。慢性或長期病症是目前無法治癒的病症,並且通過藥物和其他治療進行治療。在患有慢性健康狀況的患者中,心理健康問題很常見。這個頁面解釋了什麼是心理健康以及它如何影響患有結節病等慢性疾病的患者。您還可以找到有用的工具來幫助自己,並提供有關在何處尋求進一步支持的提示。 

此頁面上的信息是在SarcoidosisUK Nurse Jenny的幫助下編寫的,他擁有多年與結節病和心理健康問題人士交談的經驗。

什麼是心理健康?

心理健康包括您的情緒,心理和社會福祉。它會影響你的思考,感受和行為方式,因此有助於確定你如何處理生活中的一切,無論好壞。心理健康並不總是保持不變,並且可以隨著環境在你生活的不同階段發生變化而改變。

如果您遇到心理健康問題,您的思維,情緒和行為可能會受到影響。許多因素導致心理健康問題,包括:

  • biological factors, such as genetic makeup
  • life experiences, such as illness
  • family history of mental health problems

最常見的心理健康問題包括抑鬱,焦慮,壓力和雙極障礙。

心理健康問題很常見,與他們一起生活可能非常困難。不過有很多幫助 is available, see further down this page. People with mental health problems can get better and many 恢復 完全。 

為什麼心理健康會影響慢性病患者?

Our physical and mental health are inseparably linked. People who live with a chronic physical condition such as sarcoidosis are also likely to experience mental health problems. Some reasons why chronic conditions may impact mental health include:

  • the anxiety and confusion of a new diagnosis, 或者等待診斷
  • adjusting to a new life living with sarcoidosis
  • living with pain, fatigue and other chronic symptoms
  • changes to social relationships, employment or finances
  • social isolation
  • low self-esteem
  • stigma and discrimination

重要的是要記住,心理健康問題是常見的 正常 反應 壓力和困難的情況。

什麼時候需要評估或治療?

每種心理健康狀況都有自己的症狀和體徵。 通常,如果您遇到以下情況,可能會考慮專業幫助:

  • obvious changes in personality, eating or sleeping patterns
  • an inability to cope with problems or daily activities
  • strange or grandiose ideas
  • excessive anxiety
  • prolonged depression or apathy (lack of enthusiasm or interest) 
  • thinking or talking about suicide
  • using alcohol or drugs as a way of coping
  • extreme mood swings or excessive anger, hostility or violent behaviour

Mental Health and Coronavirus

Many people are, understandably, worried and anxious about coronavirus. For some advice on managing your mental health during this time, please watch our video with our nurse Jenny.
You might also find the following resources useful:

緊急心理健康支持

  • 如果您一直與精神衛生專業人員合作並擁有危機團隊編號(或護理計劃,為您提供有關危機中呼叫者的信息),請致電他們。
  • 如果您需要緊急護理,請撥打111致電NHS或聯繫您的全科醫生。如果是緊急情況,請致電999。
  • 撒瑪利亞人 可以幫助您保密地談論心理健康等問題。您不必因自己的支持而有自殺傾向。請撥打116 123免費電話或發送電子郵件至jo@samaritans.org。 
  • 心理健康慈善心靈有一個 緊急求助工具包 有想法幫助你應對困難的想法和感受。

我該怎麼做才能幫助自己?

步驟1: 了解心理健康並識別您可能出現的任何症狀。使用此頁面上的工具和信息以及外部鏈接可幫助您了解更多信息。

第2步: Talk to someone about how you feel! Partner, friend, family member, colleague, 結節病英國護士幫助熱線 or another confidential support line.

第3步: Consult your family doctor or make an appointment with a counsellor. With appropriate support, you can identify mental health conditions and explore treatment options, such as medications or counselling.

Many people who have mental health conditions mistakenly consider their signs and symptoms as “nothing to worry about”.

 

If you’re concerned about your mental health, don’t hesitate to seek advice.
There are tool and tips to help you below.

Further Support and Information:

Quick Self-Help Tools:

心理健康服務:

Counselling is a talking therapy that involves a trained therapist listening to you and helping you find ways to deal with emotional issues. You can get many psychological therapies, including counselling, free on the NHS. You can refer yourself directly or you can get a referral from your GP if you prefer. Click here to find out more about NHS counselling. Sometimes there can be long waiting lists for NHS counselling services. You can search for private counselling services here.

Mental health services are free on the NHS. In most cases you will need a referral from your GP to access them. NHS mental health services are explained here.

如果你患有結節病,那麼 NHS長期病情評估 會告訴你可能有權獲得哪些幫助和支持。它將評估您的情況,並為您提供個性化的建議和可打印的清單。

自我管理英國 教育改善福祉所需的知識,技能和信心。 

Self-management Courses in the UK

英國: 專家患者計劃是一項免費的自我管理課程,適用於任何長期健康狀況的人。它涵蓋了結節病患者可能會發現有用的許多主題,包括處理困難的情緒,放鬆技巧,行動計劃,管理常見症狀和溝通技巧。它可以在英格蘭的許多地方使用,所以如果您附近有課程,那麼值得向當地市政委員會或GP進行手術。其他領域可能有類似的方案,通常稱為自我管理程序,或針對有特殊症狀的人的方案,例如呼吸問題。

威爾士: EPP Cymru經營一個 慢性病自我管理計劃,包括在威爾士的在線課程。  

蘇格蘭:Scottish Recovery Network has information on mental health self-management. They describe it as working with people to provide the right support at the right time to enable people to choose how they want to live.

心理健康和藥物濫用:

Having sarcoidosis (or waiting for a diagnosis) can be tough, and some people turn to alcohol or other substances (drugs) as a way of coping.  Many of these substances, including alcohol, may affect your mental health and can actually increase anxiety and stress.  There’s more information on alcohol and mental health on the Drinkaware網站.  

If you are concerned about your use of alcohol or drugs, it can help to talk to someone.  The following helplines offer confidential advice and information:

英國飲用水:0300 123 1110和 坦率 (毒品):0300 123 6600 

蘇格蘭飲用水:0800 7 314 314和 知道分數 (毒品):0800 587 5879

威爾士Dan247: 0808 808 2234 (alcohol and drugs)

北愛爾蘭: 成癮NI: 028 9066 4434 (alcohol and drugs)

什麼證據表明心理健康會影響結節病患者?

那些患有結節病等長期病症的人患精神疾病的可能性要高出兩到三倍。患有兩種或兩種以上長期疾病的人患抑鬱症的可能性是沒有長期疾病的人的七倍(World Health Survey,2007)。

了解更多有關心理健康和慢性健康狀況的信息 mentalhealth.org。

閱讀 罕見疾病英國報告 關於生活在罕見病症中的影響對心理健康的影響。 

進一步閱讀:

Cox,CE,Donohue,JF,Brown,CD,Kataria,YP,&Judson,MA(2004)。結節病患者的健康相關生活質量。 胸部, 125(3), 997-1004.

Chang,B.,Steimel,J.,Moller,DR,Baughman,RP,Judson,MA,Yeager Jr,H.,...&Rand,CS(2001)。結節病的抑鬱症。 美國呼吸和重症監護醫學雜誌, 163(2), 329-334.

Goracci,A.,Fagiolini,A.,Martinucci,M.,Calossi,S.,Rossi,S.,Santomauro,T.,...&Pieroni,MG(2008)。結節病的生活質量,焦慮和抑鬱。 綜合醫院精神病學, 30(5), 441-445.

來自SarcoidosisUK的相關內容:

護士熱線

存在SarcoidosisUK護士幫助熱線,為受影響的人提供免費的質量支持和信息。

支持

SarcoidosisUK has a range of support services that may be able to help you with mental health problems.

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