THE SARCOIDOSISUK TEAM
Meet the SarcoidosisUK team below. We would love to have a chat with you – please do get in touch.
Henry SHELFORD, BSc (Hons) MSc MBA FRGS
Chairman and CEO
Henry was diagnosed with Pulmonary Sarcoidosis in 2002 and, following a long period of treatment, is now in remission. He appreciates how lucky he is and to help more people have the same positive outcome he has been volunteering for Sarcoidosis UK ever since. In 2003 he raised £30,000, which he had doubled to £60,000, to fund Sarcoidosis research at Oxford University. He raised the money by holding the World’s Highest Formal Dinner – for which he was awarded a Guinness World Record. A record he still holds! Henry was elected as Chairman of the charity in 2014. He has refocused the charity on support, information, awareness and research. As with all SarcoidosisUK’s trustees Henry provides his time on a voluntary basis without any remuneration.
Henry says: “There is no treatment for Sarcoidosis – solely a small list of drugs to help control the symptoms and impact. For some the disease burns out. I was lucky it burnt out leaving me with little long term damage. For others it leaves massive damage. And for still others it doesn’t burn out. As a chronic condition it wreaks more and more irreparable damage and can ultimately be fatal. I volunteer with SarcoidosisUK so that we can stop that. We’re fortunate that we don’t have to do hugely expensive blue sky research – which would be almost impossible considering our income. Sarcoidosis is a rare under-researched disease. That lack of historic research allows us to utilise the backlog of learning, and other disease cures, to cure Sarcoidosis. In each case we simply have to ask “Does that apply to us?”. It’s a much cheaper, but still expensive, question to answer. It still requires Doctors, Research Professionals, Equipment, Clinics, and Labs.
Each piece of research we commission takes us one step closer to a cure. To help us get there please consider donating to us. Every single donation matters. Together we will find a cure.”
The Board of Trustees
John CORDNER, BSc FCCA
John joined SarcoidoisUK as Treasurer in 2015. He is in charge of the charity accounts.
John developed symptoms in 2007 and was finally diagnosed with cutaneous sarcoidosis in 2012. This was later reclassified as systemic sarcoidosis. His condition is chronic but has largely been stabilised with medication. Like many sufferers he struggles with fatigue and aches and pains.
John studied mathematics at the University of Leeds and on leaving university trained as an accountant. He has been a member of the Association of Chartered Certified Accountants for over 20 years and holds a practising certificate. For over 25 years he worked in financial services in the City. He now runs his own accounting practice
Paul SINCLARE, ICSA MCIM MBA
Paul joined SarcoidosisUK in 1997 and became Secretary in 2011. He has been a key part of the charity’s growth over the past 20 years.
Paul contracted Pulmonary Sarcoidosis in 1988. Initially he had a variable experience with treatments and hospitals but now has been stable for many years and is responding well to his drug regime.
Paul first trained as a chef and then returned to study, qualifying as a company secretary. He has spent much of his working life in the area of finance, more recently working primarily with charities. He is now semi-retired.
Susan WILSON, BCom FCCA
Emil GADIMALIYEV, MBBS MBA
Jack RICHARDSON, BSc MSc
Alan Robertson, MA, PGC
Leo CASIMO, BA (Hons)
Marketing and Fundraising Executive
Sarcoidosis Specialist Nurse
Sarcoidosis Specialist Nurse
I joined SarcoidosisUK in 2015. I organise our Scottish groups, help moderate the Facebook page and represent the charity as a patient ambassador. I’ve had sarcoid most of my life, affecting my brain, skin, eyes, lungs, joints and liver. Before my diagnosis I worked for a bank but had to retire early, through ill health. I’ve been blessed with a wonderful husband and good circle of family and friends.
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We would love to hear from you. Please get in touch with any questions, comments or suggestions.
Everything SarcoidosisUK does improves awareness of sarcoidosis. See how you can get involved.
SarcoidosisUK fund world-leading research into sarcoidosis. Our goal is to find a cure for the condition.