SARCOIDOSISUK BLOG

We have some exciting opportunities to join SarcoidosisUK! We currently have vacancies for a Fundraising Executive and the Chair of Trustees. If you're looking for a role where you can make a real impact, these could be the jobs for you! It is a chance to help to grow...

Sarcoidosis is an inflammatory condition that can affect many parts of the body. What makes it unique is its ability to affect each person so differently. This unpredictability highlights the complexity of the condition but also creates a lot of confusion surrounding...

SarcoidosisUK launched its Research Innovation Awards last year and received many high quality applications which were assessed by external experts, members of our Patient Advisory Panel and the independent Medical and Scientific Advisory Panel. At the end of the...

It's Day 1 of the SarcoidosisUK Christmas Advent Calendar! We want to share 12 big achievements and milestones that we've had this year SarcoidosisUK Research Innovation Award Launch Two Online Patient Days 10 Years of the Facebook Support Group 500+ Nurse Helpline...

Jess’s Rule is a new primary care initiative to encourage GP teams to rethink a diagnosis if a patient presents three times with the same symptoms or concerns. Jess Brady passed away in 2020, at age 27 after a delayed cancer diagnosis. This new rule, in her name,...

The 2025 Nobel Prize in Physiology or Medicine to Mary E. Brunkow, Fred Ramsdell and Shimon Sakaguchi “for their discoveries concerning peripheral immune tolerance.” We are glad to see that the importance of studying the immune system has been recognised by the Nobel...

The Joint Committee on Vaccination and Immunisation (JCVI) has updated its advice for the autumn 2025 COVID-19 vaccination programme. Not everyone with sarcoidosis will be eligible for the latest COVID boosters as they have tightened restrictions. Please check with...

Sarcoidosis is a rare inflammatory disease which mostly affects the lungs, although other parts of the body such as the heart, eyes and nervous system can also be involved. It is not properly understood and there is currently no known cure. SarcoidosisUK is a small...

In celebration of Small Charity Week, we're taking a moment to highlight how our work is made possible through incredible support! Even with just three office staff and three invaluable nurses running our helpline, we truly benefit from our supportive sarcoidosis...

Ritchie is halfway through a 900km sea kayak journey around the heart of Scotland! 🛶 After a long sarcoidosis diagnosis process, he has set off on a 900km solo journey to raise vital awareness of sarcoidosis and raise some money for SarcoidosisUK. His journey takes...

We're wishing Sophie and Oli the best of luck as they take on the Leeds Half Marathon this Sunday! 🎉 They have shared why they are running for SarcoidosisUK: In 2021, my brother Oli’s life changed. He was diagnosed with sarcoidosis at just 33 – a rare and largely...

We are sending Craig lots of luck luck as he takes on the London Marathon this weekend! 🏃‍♂️‍➡️ Craig has shared his journey with sarcoidosis so far: "Sarcoidosis was first mentioned to me back in 2016 when I had a biopsy taken on a patch of scar tissue on my elbow...

We are wishing Sue the best of luck as she takes on the London Marathon this weekend! 🎖️Sue has shared her sarcoidosis journey with us: "I am running the London Marathon on 27 April. It’s 19 years since my last one in the Smoke and although I have done one since, as...

Hear from Nick about his sarcoidosis journey so far 📣 Nick has found running a good way to keep track of his condition and took on the Brighton Marathon today to raise vital awareness and funds for sarcoidois earlier this month, thank you for your support Nick! Click...

We have exciting sarcoidosis research news! We have launched the SarcoidosisUK Research Innovation Award 2025, offering funding for innovative and novel research proposals that seek to address any of our research priorities. This award offers pump-priming/seed funding...

Here is the programme for our 2025 Sarcoidosis Patient Day, taking place online on the 29th April! There will be lots of time dedicated to answering your questions, so even if you can't make it for the full event be sure to drop in when you can! You can register here...

Registrations Open for our Sarcoidosis Patient Day! ­ On the 29th April 2025, 09:15am-13:45pm (BST), SarcoidosisUK will host a virtual Sarcoidosis Patient Day and registration is now open for this exciting event! We will hear from a variety of speakers on a range of...

We have exciting news ahead of Sarcoidosis Awareness Month this April! Every pound raised in April will go directly into funding vital sarcoidosis research Sarcoidosis suffers from low-levels of research, and so we’re dedicating a whole month to building our research...

It's Sarcoidosis Awareness Month in April and hosting another virtual Sarcoidosis Patient Day is just one of the exciting things we have planned! Join us on the 29th of April, to hear from a range of speakers talking all things sarcoidosis. We will be sharing more...

SarcoidosisUK has just been accepted as a member of the Fundraising Regulator scheme and this logo will soon appear on our webpages and documents. The scheme was set up in 2016 as an independent regulator to oversee how charities raise money, and to set the standards...

Today is Rare Disease Day and we wanted to take this opportunity to remind you that you are not alone. Having a rare disease, such as sarcoidosis, can be isolating. You may not have heard of sarcoidosis before you were diagnosed, you may not know anyone else affected...

We'd like to extend Juan Carlos Quijano-Campos a huge congratulations for winning two awards in 2024 for his work, which focuses on the impact of cardiac sarcoidosis on quality of life, including physical, mental, emotional, and social wellbeing. Last year, Juan won...

Dr Claire Rice has recently received $100,000 grant funding from Foundation for Sarcoidosis Research as part of their Pilot Grant program. This money will go towards Dr Rice's Cell-free DNA as a Biomarker for Neurosarcoidosis which "aims to assess the potential of...

When the charity was formed it was supported by members who had the overall responsibility for charity. Following a review and consultation in 2021 the members decided it would be preferable to form a replacement charity with a more up to date constitution, which did...

Our annual Advent Calendar sees a post every day in the lead up to Christmas. It helps us to raise awareness for sarcoidosis among your family and friends and allows us to share things you might find useful (or even fun things like a wordsearch!). Thank you so much to...