Read all SarcoidosisUK Blog posts below. Just click each story to read more! If you have an idea for a blog post, great! Please get in touch.
SarcoidosisUK know that sarcoidosis patients often feel very isolated with their rare condition. Cardiac sarcoidosis (CS) is even rarer and can leave patients feeling completely lost and confused. The new SarcoidosisUK Cardiac Sarcoidosis Facebook Group aims is to...read more
Paid Research Opportunity Cello Health Insight, an independent market research company, is looking to speak with sarcodosis associated pulmonary hypertension (SAPH) patients. The aim is to develop a better understanding of patient’s perceptions and expectations of...read more
The SarcoidosisUK Nurse Helpline has helped 500 people since it's inception in 2016! We are extremely proud of this achievement. Sarcoidosis patients are often left in the dark with little information about their condition or support with managing symptoms. The...read more
Christmas Card Packs Are Now Available on the SarcoidosisUK Shop Congratulations to Lesley Cochrane who has won the SarcoidosisUK Christmas Card Design Competition! We have turned Lesley's winning design into a bespoke Christmas Card which is now available to purchase...read more
SarcoidosisUK is excited to announce the start of the Christmas Card Design Competition! Get involved and design a festive SarcoidosisUK Christmas card. The winning design will be professionally made and sold on the SarcoidosisUK Shop! We are excited to see your...read more
The SarcoidosisUK 20th Anniversary campaign has raised over £63,000! Our 20th Anniversary Campaign, created to celebrate the amazing work of SarcoidosisUK over the last two decades, has officially come to a close. A year ago we set an ambitious target of £60,000. We...read more
SarcoidosisUK has been working in Paris on behalf of sarcoidosis patients at the European Respiratory Society (ERS) Congress 2018 "It has been a fully packed programme over 4 days, meeting sarcoidosis patients, patient organisations, clinicians and...read more
SarcoidosisUK has officially launched its online charity shop! An amazing selection of various products. Depending on your needs you may be interested in different products. It could be the various gorgeous SarcoidosisUK bags or awareness ribbon you want personally...read more
SarcoidosisUK know that sarcoidosis patients often feel very isolated with their condition. Neurosarcoidosis (NS) is even rarer and, with little specialist support available, NS can leave patients feeling completely lost and confused. The new SarcoidosisUK...read more
70% show signs of sarcoidosis in their liver! It is not well known that Sarcoidosis of the Liver, or ‘hepatic sarcoidosis’, affects the majority of patients with sarcoidosis. In fact, up to 70% show signs of sarcoidosis in their liver. The good news is that most of...read more
King's Sarcoidosis Questionnaire Sarcoidosis affects patients very differently, particularly over time. It is therefore sometimes difficult for consultants to know how sarcoidosis is affecting their patient's health and quality of life. SarcoidosisUK have partnered...read more
SarcoidosisUK now has a new, expansive fundraising events schedule! SarcoidosisUK has teamed up with Run for Charity. This means we can now offer over 100 different fundraising opportunities throughout the year! Events are taking place all across the UK! Also for the...read more
'Company B', the winning team of the National Quiz 2018, welcome their newest member! Little baby Iris who was in attendance at the quiz, although she had yet to be born, came out just in time to collect the prizes for the victors, including the SarcoidosisUK Trophy....read more
Would you like to be more involved in sarcoidosis research and awareness projects? Join the new SarcoidosisUK Patient Council to have your say! The SarcoidosisUK Patient Council is a group of trusted sarcoidosis patients and their carers who help to inform, develop...read more
Donr makes it even easier for you to donate money towards the Sarcoidosis cause! With our new partnership with ‘Donr’ we now have a fundraising platform that allows you to donate not only through their website but also through your mobile phone. This...read more
Last week a post on the SarcoidosisUK Facebook Group received a lot of interest and attention: "Thought it might be good if everyone suggests a positive tip or suggestion for others on their sarcoid journey: what has helped you, any advice or things to make our lives...read more
Donate to SarcoidosisUK using AmazonSmile! AmazonSmile is an exciting new fundraising initiative from the online shopping giant Amazon. You can make an automatic donation to a charity of your choice each time you shop on Amazon. SarcoidosisUK have signed...read more
Exciting news! There is sponsored cycle ride taking place 13th and 14th September. The journey will take you from Worcester to Lyme Regis, providing a fantastic opportunity to test your endurance, explore England and make some great friends. Help to reach the £10,000...read more
The SarcoidosisUK National Quiz was a booming success! All the SarcoidosisUK National Quiz events throughout April were fantastically successful! Thank you to the amazing volunteers who helped make them happen and to everyone who came to support their local quiz. In...read more
In April Donate Today published a news story about the difficulties living with the 'invisible illness' sarcoidosis, the support services SarcoidosisUK provides patients and how you can get involved to support our 20th Anniversary Research Campaign. If you missed it,...read more
The SarcoidosisUK Nurse Helpline has been providing invaluable support and information to anyone affected by sarcoidosis since 2016. The Helpline gives callers the chance to talk to someone who really understands them, for as long as they need, from the comfort of...read more
Last year, you gave us your ideas and suggestions via the SaroidosisUK Supporter Survey. Many of you asked for an FAQ page on the website. We thought this was a fantastic idea! The FAQs have been written with the help of a number of patients and experts including the...read more
In February Donate Today published a news story about SarcoidosisUK, the work we are doing to support patients, and how you can get involved to support our 20th Anniversary Research Campaign. If you missed it, have a read by clicking the link...read more
We are very pleased to announce that the new-look SarcoidosisUK website is now live! We have given it a cleaner, more professional look. This will make it easier for you to find the information you need as quickly as possible. The SarcoidosisUK website is designed for...read more
SarcoidosisUK are delighted to announce our Central London Support Group has formed a clinical partnership with the Sarcoidosis Medical Team at Imperial College (located at St Mary's and Hammersmith Hospitals). This partnership will create a stronger support and...read more
Related content from SarcoidosisUK:
Sarcoidosis and Fatigue
Do you experience fatigue? Find symptoms, treatment and more information about sarcoidosis and fatigue.
Do you want to find a consultant? Use our directory to find a sarcoidosis specialist or clinic near you.
How can we support you? Find more information on our Nurse Helpline, Support Groups and Online Support.