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For SarcoidosisUK Covid-19 advice click here.

With the events we rely on cancelled this is a financially challenging time for the charity.
Please consider setting up a monthly donation for this period to help us bridge it.


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2 days ago

This weekend SarcoidosisUK fundraiser Marianne will be taking on the Hever Castle Triathlon! "Sarcoidosis is a disease that has impacted our family since Eugene's diagnosis nearly 4 yrs ago. COVID-19 and Pulmonary Sarcoidosis are not good bed partners which has resulted in 18 months of upheaval in our family, especially for Eugene who still needs to continue to shield. The picture on my page sums it all up, with Eugene always taking his circumstances in good grace, even whilst sitting outside in a gale! The homemade Triathlon myself and 5 friends completed in April for my 50th whet my appetite to try an organized Triathlon, something that has been on my bucket list for years. I have been gritting my teeth throughout my training with lots of encouragement and fun being had with Gaynor, Clare, and Kirstie who will also be doing the event. Knowing I can help raise money for a charity close to my heart gives it all a bit more meaning."- Marianne Please join us in wishing Marianne the best of luck for the event! You can donate to her JustGiving page here: www.justgiving.com/fundraising/marianne10 ... See MoreSee Less
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Welcome to SarcoidosisUK!

SarcoidosisUK have four main goals – to provide quality information, to provide meaningful support, to increase awareness, and to fund research towards a cure. We work with top sarcoidosis specialists to write detailed information pages and leaflets. We have different  support options so you can choose what works best for you; you can speak to a specialist nurse, you can meet others affected by sarcoidosis at one of our support groups or chat virtually in our online forums. We know it can be hard to find a doctor who understands sarcoidosis so we’ve created a recommended consultant list.

However SarcoidosisUK’s main goal is find a cure. We have funded a significant piece of research into understanding more about sarcoidosis each year for the past 5 years. We are going to fund more research this year, next year, and every year until we have found a cure for sarcoidosis.

None of our work is possible without donations. We receive no government money and are 100% reliant on your generosity. Any donation, big or small, makes a huge difference to our ability to help others and fund a cure. Please consider donating today!

Wishing you the very best,

Peter Tichbon

Executive Chairperson, SarcoidosisUK

Research Spending to Date

SarcoidosisUK Consultant Directory Entries

SarcoidosisUK Support Groups

SarcoidosisUK Nurse Helpline Calls



Chronic Pain Survey By SarcoidosisUK

NICE (National Institute for Care & Health Excellence) has launched a consultation on draft guidance for the assessment and management of chronic pain. SarcoidosisUK is responding to this consultation so we want YOUR feedback to represent our members' views as...

Sarcoidosis Patient Compass

The Sarcoidosis Patient Compass is an interactive tool to help guide you through your sarcoidosis journey and help you understand which questions to ask your doctor. The working group that created the Sarcoidosis Patient Compass was led by SarcoidosisUK. Available to...

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