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Welcome to SarcoidosisUK!
I am the Chairperson of SarcoidosisUK and was diagnosed with sarcoidosis in 2004. I know first hand how challenging it can be to have sarcoidosis. That challenge is the reason why we all work so hard at SarcoidosisUK.
SarcoidosisUK have four main goals – to provide quality information, to provide meaningful support, to increase awareness, and to fund research towards a cure. We work with top sarcoidosis specialists to write detailed information pages and leaflets. We have different support options so you can choose what works best for you; you can speak to a specialist nurse, you can meet others affected by sarcoidosis at one of our support groups or chat virtually in our online forums. We know it can be hard to find a doctor who understands sarcoidosis so we’ve created a recommended consultant list.
However SarcoidosisUK’s main goal is find a cure. We have funded a significant piece of research into understanding more about sarcoidosis each year for the past 3 years. We are going to fund more research this year, next year, and every year until we have found a cure for sarcoidosis.
None of our work is possible without donations. We receive no government money and are 100% reliant on your generosity. Any donation, big or small, makes a huge difference to our ability to help others and fund a cure. Please consider donating today!
Wishing you the very best,
Research Spending to Date
SarcoidosisUK Consultant Directory Entries
SarcoidosisUK Support Group Attendees in 2018
SarcoidosisUK Nurse Helpline Calls
Announcements
Chronic Pain Survey By SarcoidosisUK
NICE (National Institute for Care & Health Excellence) has launched a consultation on draft guidance for the assessment and management of chronic pain. SarcoidosisUK is responding to this consultation so we want YOUR feedback to represent our members' views as...
Sarcoidosis Patient Compass
The Sarcoidosis Patient Compass is an interactive tool to help guide you through your sarcoidosis journey and help you understand which questions to ask your doctor. The working group that created the Sarcoidosis Patient Compass was led by SarcoidosisUK. Available to...
SarcoidosisUK Extends Partnership With Bromley FC
We are thrilled that the partnership between Bromley FC and SarcoidosisUK has been extended. It's great to see the SarcoidosisUK logo on the front of the Bromley FC shirts! Our continued partnership with Bromley FC allows us to take our vital message to more...
New SarcoidosisUK Video | Cardiac Sarcoidosis | Dr Thillai
SarcoidosisUK talked to Dr Muhuthan Thillai at Papworth Hospital in Cambridge. Dr Thillai is the Lead Clinician for the Cambridge Interstitial Lung Disease Unit. He is a Respiratory Consultant who has worked with sarcoidosis patients at many expert centres across the...
Neurosarcoidosis Patient Video
UK Neurosarcoidosis expert Dr. Kidd talks about his work and answers questions and Fionnuala Potts shares her neurosarcoidosis experience. Watch the video here.
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