Quality, Reliable Information About Sarcoidosis
We Fund World-Leading Sarcoidosis Research
We Are 100% Reliant On Your Donations
Welcome to SarcoidosisUK!
I am the Chairperson of SarcoidosisUK and was diagnosed with sarcoidosis in 2004. I know first hand how challenging it can be to have sarcoidosis. That challenge is the reason why we all work so hard at SarcoidosisUK.
SarcoidosisUK have four main goals – to provide quality information, to provide meaningful support, to increase awareness, and to fund research towards a cure. We work with top sarcoidosis specialists to write detailed information pages and leaflets. We have different support options so you can choose what works best for you; you can speak to a specialist nurse, you can meet others affected by sarcoidosis at one of our support groups or chat virtually in our online forums. We know it can be hard to find a doctor who understands sarcoidosis so we’ve created a recommended consultant list.
However SarcoidosisUK’s main goal is find a cure. We have funded a significant piece of research into understanding more about sarcoidosis each year for the past 3 years. We are going to fund more research this year, next year, and every year until we have found a cure for sarcoidosis.
None of our work is possible without donations. We receive no government money and are 100% reliant on your generosity. Any donation, big or small, makes a huge difference to our ability to help others and fund a cure. Please consider donating today!
Wishing you the very best,Henry Shelford
Research Spending to Date
SarcoidosisUK Consultant Directory Entries
SarcoidosisUK Support Group Attendees in 2017
SarcoidosisUK Nurse Helpline Calls
SarcoidosisUK know that sarcoidosis patients often feel very isolated with their rare condition. Cardiac sarcoidosis (CS) is even rarer and can leave patients feeling completely lost and confused. The new SarcoidosisUK Cardiac Sarcoidosis Facebook Group aims is to...
Paid Research Opportunity Cello Health Insight, an independent market research company, is looking to speak with sarcodosis associated pulmonary hypertension (SAPH) patients. The aim is to develop a better understanding of patient’s perceptions and expectations of...
The SarcoidosisUK Nurse Helpline has helped 500 people since it's inception in 2016! We are extremely proud of this achievement. Sarcoidosis patients are often left in the dark with little information about their condition or support with managing symptoms. The...