Quality, Reliable Information About Sarcoidosis
We Fund World-Leading Sarcoidosis Research
We Are 100% Reliant On Your Donations
Welcome to SarcoidosisUK!
I am the Chairperson of SarcoidosisUK and was diagnosed with sarcoidosis in 2004. I know first hand how challenging it can be to have sarcoidosis. That challenge is the reason why we all work so hard at SarcoidosisUK.
SarcoidosisUK have four main goals – to provide quality information, to provide meaningful support, to increase awareness, and to fund research towards a cure. We work with top sarcoidosis specialists to write detailed information pages and leaflets. We have different support options so you can choose what works best for you; you can speak to a specialist nurse, you can meet others affected by sarcoidosis at one of our support groups or chat virtually in our online forums. We know it can be hard to find a doctor who understands sarcoidosis so we’ve created a recommended consultant list.
However SarcoidosisUK’s main goal is find a cure. We have funded a significant piece of research into understanding more about sarcoidosis each year for the past 3 years. We are going to fund more research this year, next year, and every year until we have found a cure for sarcoidosis.
None of our work is possible without donations. We receive no government money and are 100% reliant on your generosity. Any donation, big or small, makes a huge difference to our ability to help others and fund a cure. Please consider donating today!
Wishing you the very best,Henry Shelford
Research Spending to Date
SarcoidosisUK Consultant Directory Entries
SarcoidosisUK Support Group Attendees in 2018
SarcoidosisUK Nurse Helpline Calls
SarcoidosisUK and our community have been celebrating Sarcoidosis Awareness Month throughout April. We have had lots of exciting events to help raise the profile of the condition and to raise more funds for important research.Sarcoidosis Awareness Month...
SarcoidosisUK are thrilled to announce that we have committed £60,000 to a clinical trial at the University of Hull. Researchers will be testing an antibiotic medication to analyse its effectiveness in reducing mTOR activity in sarcoidosis patients. We are delighted...
The SarcoidosisUK BIG Survey is an online survey collecting lots of important information from sarcoidosis patients around the world. The data will be used to help find the cause of sarcoidosis and inform future research priorities. Read more about the project on this...
SarcoidosisUK is inviting you to come to our fantastic event! SarcoidosisUK is hosting a pre-release screening (before it premieres at various film festivals) of the ‘The iD Project’, a documentary directed by British-Dominican filmmaker, SarcoidosisUK Trustee, and...
The Virgin Money London Marathon is one of the biggest and most important events of the year. With the charity unable to get an official charity place this year we are so blessed to have so many people running the marathon for us in 2019. We have a great...