Sarcoidosis Support
Whether you are looking for sarcoidosis information, or someone to talk to, we are here for you.
We know sarcoidosis can often leave you feeling confused, overwhelmed, and isolated. You’re not alone in this feeling or in your diagnosis.
Read our information below, watch our video here, or get in touch today to find out how we can support you.
Nurse Helpline
Having someone to talk to who truly understands sarcoidosis can make all the difference. Schedule a call to talk to one of nurses if you or someone you know is affected by sarcoidosis.
Local Support Groups
With rare diseases, like sarcoidosis, talking to other people can be very important. Join your local support group to share your experience of sarcoidosis and learn from others in your area.
Facebook Forums
Support is available at your fingertips. Join one of our online support groups wherever you are. You can ask questions and share your sarcoidosis journey so far.
Mental Health Resources
Our physical and mental health are inseparably linked. Click here to find useful tools to help yourself and and tips on where to look for further support.
Financial Support
Living with sarcoidosis may well affect your financial situation. Find information on a range of benefits and sources of financial support that you may be entitled to.
Your Consultation Guide
Thinking about the appointment in advance can really help. Download this simple ‘Get Ready for your Consultation’ Guide to help you consider the topics you would like to discuss so that you don’t forget anything whilst you are there.
Patient Day Hub
Our Patient Days are interactive learning events where you can get accurate and up-to-date information from sarcoidosis specialists. They offer a platform for learning through informative sessions and interactive Q&As. Our Hub features recorded sessions from all previous Patient Days, allowing you to revisit them at your convenience.
Sarcoidosis Stories
It is important to recognise and share the wide range of experiences of people with sarcoidosis, as each individual’s journey with the condition is unique. Read our collection of stories or submit your own. Your story matters, and can raise awareness of sarcoidosis.