SarcoidosisUK know that sarcoidosis patients often feel very isolated with their condition. Neurosarcoidosis (NS) is even rarer and, with little specialist support available, NS can leave patients feeling completely lost and confused.
The new SarcoidosisUK Neurosarcoidosis Facebook Group aims is to connect NS patients (and those with suspected NS) from across the UK to help support and educate each other. In addition, the group will host a discussion about other ways of meeting, particularly to include those who do not use the internet and / or Facebook.
If you have diagnosed or suspected NS, or you help to support someone who does, join the group by clicking the button below.